Everyone suffers with M.E differently so not everyone suffers with all the same symptoms or the same degree of severity in those symptoms. Some of the symptoms include..


  • Extreme exhaustion, debilitating fatigue – Up to the point of collapse. Can not just push past it. Not like normal tiredness, sleep or rest does not refresh
  • PEM (Post-exertional malaise) – Fatigue that is delayed by a day or two after too much activity also known as payback


  • Muscle pain – Intense pain in all muscles in the body but particularly legs and arms
  • Bone pain
  • Nerve pain – Skin often too painful to touch or to have clothing or bedding on.
  • Stiff and painful joints
  • Poor mobility


  • Muscle weakness – All throughout the body
  • Poor gross motor skills and fine motor skills
  • Muscle tremors and spasms
  • Cognitive difficulties – Impairment of concentration and short term memory. Difficulty processing information and retrieval of the right words, commonly known as ‘brain fog’
  • Loss of temperature control – Constantly fluctuating between too hot or too cold
  • Migraines/Headaches
  • Swollen glands
  • Sore throat
  • Ear ache
  • Light, noise, taste, smell, touch sensitivity – Often have to be in a dark and quiet room without movement
  • Weak immune system – Pick up viruses easily
  • Dizziness
  • Nausea
  • Sleep dysfunction/Insomnia
  • Flu like symptoms constantly
  • Digestive problems/Food intolerance

Sadly, because of all the symptoms there is a loss of a normal existence so it can be lonely and isolating. It affects every part of your life including work, education, social life, hobbies, friendships and for some there is a battle against ignorance.