About Merryn

Nominations for Merryn’s Smile Day 2024 are open. You can nominate a Severe or Very Severe ME sufferer to receive a special Smile on the 13th May 2024 by completing our nomination form.

When Alice asked me to write something about Merryn and share a little bit of the person behind the day it felt like a wonderful way to honour Merryn. But how do you describe a ball of mischief, love, trouble and gentleness, how do I encapsulate her love for life and her beautiful heart? I will do my best, although I’m sure I’ll fall short.

Merryn was a bundle of energy with an amazing joy at life. She didn’t walk into a room, she bounced. She would draw people to her and her infectious laugh could be heard by all around her. We’ve been told by school friends of Merryn’s that her laugh could be heard echoing down the school corridors, you could hear her before you saw her and this is an enduring memory of her.

She was fearless and a daredevil. The worst thing you could do was tell her she couldn’t do something or dare her. On a family holiday there was a HUGE inflatable slide. Amy dared Merryn to jump onto it. I remember saying to Amy “why on earth did you say that!” and Amy replying “even Merryn won’t do that” Minutes later we saw Merryn jumping high into the air and bouncing all the way down the slide!

Merryn had the kindest heart. No matter how ill she was she always thought of others, never forgetting birthdays, special occasions or a just because gift. If she knew a friend was going through a particularly bad time she would send a card, a little gift or her favourite – a balloon, as she always said balloons make everyone smile. It gave her joy to think she had made someone smile.

She was a fashionista with a style totally unique to her! She somehow managed to put clothes together that shouldn’t go at all yet on her they worked. She was approached numerous times when out and about by fashion bloggers and photographers wanting to take her picture and write about her style. Her hair – big, backcombed and usually topped by a big bow had its own Facebook page set up by someone at school, Merryn thought it was hilarious!

Merryn hated injustice and would always support the underdog. She was fiercely loyal and particularly passionate about supporting the homeless and homelessness issues.

Merryn was tenacious and stubborn. Once she made her mind up, that was it. She was relentless in her quest for a nose piercing and pestered me weekly from the age of 13. The answer was always the same- she could have it when she was 16 but she never gave up and in the end she did get it done slightly before her 16th birthday much to her joy. I think this tenaciousness helped her cope with the unrelenting suffering she endured with Severe M.E.

Merryn loved school, although more for the social aspect than the learning! She was devastated at missing a lot of her final year, and too ill to sit her exams was given leniency and awarded predicted grades based on her work. Her proudest achievement was receiving an A for drama, a subject she loved and was so good at.  Her dreams were of studying Performing Arts at LIPA and pursuing an acting career with her dream job being The Dr’s assistant – she was a huge Dr Who fan, particularly Matt Smith. Merryn had amazing comic timing and one of her last performances at school was a Victoria Wood sketch (the exercise one). She was hilarious and fearless in her portrayal of it.

Merryn was fun, she wasn’t a stay at home kind of person, she wanted to make the most of every day and was always up early ready to take on the world. New adventures awaited and whether that was family fun or spending time with friends the day was never dull, it was sure to involve laughter and ridiculousness and be planned in the moment, although often that was too much planning – one such adventure involved London, pot noodles and no forks and is for sure the cause of some of my grey hairs, Em Foster you know what I’m talking about!

Merryn’s two mantras for life were ‘Count Your Blessings Not Your Flaws’ – the lyrics to a song by one of her favourite singers Lauren Aquilina and ‘Life Isn’t About Waiting For The Storm To Pass, It’s About Learning To Dance In The Rain’ – which was above her bed. Merryn lived by both of these and I am always in awe of her amazing courage and bravery, she was and will always be an inspiration to me.